Our Mission
Being an organization that is comprised of individuals, families, healthcare professionals, and industry partners that are focused on rare disease. It is our mission to make an impact on the rare disease industry. An industry that lacks funding, knowledge, and discussion in mainstream media.
"Raresearch is about creating a family. One that cares for rare disease’s and wants to help one another create solutions to helping those who are affected."
— Ryan Ferguson, CEO
For us to make an impact on the industry we have 3 areas of focus which include research, education, and social support. To further rare disease research, we have our specified donations that will go to your rare disease cause. Providing researchers with the necessary funding to find cures to the rare diseases that you care about. With education we have our blog to bring awareness to the many rare diseases in the world as well as to help others find local educational meetings and events. Lastly there is our focus on social support. With this we want to help create a space for social interactions and support for those who are living and/or are affected by rare disease.